The Stomach Diaries Part XI: The Detox Begins

August 29, 2021

Doing lymphatic drainage massage on my face to decrease facial swelling.

Well, well, well. Here we are at 2:03 am on a Sunday morning and I’m up at this ungodly hour writing this long overdue health update blog post. Why in the world am I up in the middle of the night writing this blog post? I had some good parasite expulsions yesterday. The detox from parasites feels so good and cleansing but also makes me extremely nauseous and so, so tired that I went to bed at 7:00 pm last night. I slept fairly soundly until about 1:00 am when my insomnia started to kick in. Now it’s 2:00 am, I can feel the parasites moving around in my stomach like the kicks of an active baby in the womb of a pregnant woman, and my restless leg syndrome is driving me nuts, so since my mind is so alert already, I was just like “Screw it let me get up and write this blog post I’ve been meaning to write anyway”.

But let’s back up. If you follow me on Instagram where I post more of my live health updates, you’ll know I moved to Los Angeles in January of this year. Shortly thereafter, I got on a solid healing protocol with medications and supplements Dr. Lehman, my LLMD, prescribed me for my mold, Lyme and co-infections, Hashimoto’s, and Candida. I found an acupuncturist I loved to help supplement my healing process through Eastern medicine. I continued on my celery juice on an empty stomach in the morning jam and added in cucumber juice on an empty stomach in the afternoon. I took daily walks and Epsom salt baths. In the warmer and drier climate of Los Angeles, I noticed my joint and muscle pain easing up. I wasn’t throwing out limbs and having to get adjusted by the chiropractor every week. After being on the medication and supplements for a few weeks, my bloating—though still very bad—started to improve. My constipation wasn’t as severe. My skin rashes were clearing. However, my nausea, brain fog, and body swelling increased. This is to be expected as with the healing process, certain symptoms will improve while others get worse until things balance out.

The Stomach Diaries Part XI: The Detox Begins
Stopping off at the Madonna Inn on the drive down to LA to move there for good!
The Stomach Diaries Part XI: The Detox Begins
The keys to my new place in LA!

About two months into my healing protocol, I started pooping out thin, stringy things that looked like loose red threads. Since my stomach was pretty much always bloated and I tended to run constipated MY ENTIRE LIFE, I figured my gut was literally a human compost bin of rotting food I couldn’t digest and I was finally eliminating waste from probably decades ago—probably tomato skins or sweet potato skins or something else reddish. But upon further investigation—yes, I sifted through my poop and inspected these red threads closer—I realized these were parasites! Liver flukes, to be exact, a type of flatworm that infects the bile ducts, gallbladder, and the liver.

The Stomach Diaries Part XI: The Detox Begins
My legs after a bad day of swelling.

I immediately emailed Dr. Lehman and told her in addition to my mold, Lyme and co-infections, Hashimoto’s, and Candida, we had uncovered another issue: parasites! She ordered me a parasite test and the test confirmed I also had roundworms which are microscopic. This was exciting because it meant my detox pathways were opening. I hadn’t pooped out parasites before, so this meant my body was eliminating toxins or in other words healing!

The Stomach Diaries Part XI: The Detox Begins
Taking regular Epsom salt baths to help my body sweat out toxins.

We have now modified my treatment to first tackle the parasites (through medications, supplements, and acupuncture), then see what else is left over to address after I rid my body of every last parasite. It’s important to first treat the parasites because Lyme and mold can hide inside of parasites, so by getting rid of your parasites, you can in turn also get rid of some of your Lyme and mold. I’m about four months into the parasite cleanse and I’m still steadily eliminating parasites through my stool. I’m not sure how long this will go on, but considering my digestion has given me trouble ever since I can remember, I could have easily been a host to parasites for most of my life which means the parasite detox can go on for a year or more. As I continue to detox from parasites and my detox pathways continue to open, I may very well uncover more types of parasites that have been hiding deeper in my organs that haven’t come out yet.

The Stomach Diaries Part XI: The Detox Begins
A HUGE serving of cucumber juice pre-straining.
The Stomach Diaries Part XI: The Detox Begins
One very symptomatic day when I went to bed at 5:30 pm.

Earlier this month, I saw a new nutritionist, Dr. Heidi Turner, who specializes in next level digestive issues like MCAS (mast cell activation syndrome), Lyme, mold, SIBO, and other chronic illnesses. After listening to my health story, she mentioned my case is very unique in that since I was exposed to black mold/contracted toxic mold as an infant, my brain has never been in harmony with my body. It’s always been on the defense, fighting off toxins—“…us against the world” to quote the iconic Play song from Lizzie McGuire I used to listen to on repeat for my ’90s/’00s kids out there. A key component in my healing process will be retraining—or in my case, training—my limbic system to not be in fight-or-flight mode. Part of the issue is my subconscious has been programmed to overreact to anything it deems a threat to my body aka pretty much everything. That is part of the reason why my body rejects so many foods I try to introduce into my diet. Dr. Turner recommended I start the Gupta Program which is a brain retraining program. It’s used for those with a history of addiction, chronic illness, abuse, and other past trauma. I ordered the program and am waiting to get it in the mail, so updates on that to come.

In my last health update, I wrote that I tested positive for the co-infections of Lyme Babesia and Bartonella, but negative for the actual Lyme disease. Initially, I thought this meant my body was strong enough to fight off the Lyme disease but not the co-infections, but more likely than not, I actually DO have Lyme disease itself. Lyme disease can coat itself with your regular cells and hide inside of joints, connective tissue, muscle, and parasites, so it often goes undetected by even the most accurate of tests. It’s important to go to a Lyme Literate Doctor who can look at your symptoms as a whole to properly diagnose you.

To get deeper into my parasite cleanse, I started coffee enemas two weeks ago. Ideally, Dr. Lehman wants me to do daily coffee enemas, but for now, I’m starting off slow with doing them bi-weekly. I actually had a pretty strong Herx reaction to the last coffee enema I did which reminded me I need to be gentle with new treatments I try. I’m also waiting to get the Gupta Program in the mail to start the limbic training, get a tonsillectomy in two weeks (I most likely have Lyme, mold, parasites, and Candida invading my tonsils), get a septoplasty after my tonsillectomy as I probably have the same diseases infecting my sinuses, continue on the parasite cleanse, and then start introducing new foods into my diet so I can get stronger as I’ve lost a lot of muscle from taking a break from exercise and letting my body rest.

The Stomach Diaries Part XI: The Detox Begins
So grateful for my parents for moving down to LA with me and starting this new chapter of our lives together. I couldn’t do it without them, truly.
The Stomach Diaries Part XI: The Detox Begins
Especially proud of my dad who manifested his dream job in LA and is embracing his new life as a Los Angeleno.

It’s going to still be a long process, and it’s easy to feel overwhelmed, but as someone wrote me in an Instagram DM, I’m “…swimming towards an island instead of treading water”. And in my swim, I also have a lifeboat following me with a team of supporters—my doctors, my friends, my parents, and my online community—for which I am so, so grateful.

Find the past Stomach Diaries posts here and follow me on Instagram where I have saved Stories Highlights here and here and for more regular health updates.

Reflecting on 2020 and looking forward to 2021

January 4, 2021

Reflecting on 2020 and looking forward to 2021

2020, what a rollercoaster ride. Without undermining the seriousness of COVID-19 and those negatively affected by it health-wise, career-wise, family-wise, finance-wise, or in any other way and without sounding like an egomaniac, amidst all the turmoil 2020 unleashed on the world, I actually had a pretty decent year. More than decent, actually. A really great year. Hopefully I’m not coming across as insensitive if your 2020 was less than ideal, but let me reflect on how 2020 was for me.

Every year, I make a list of goals to achieve in the new year. (I don’t like the word “goals” but I don’t like the word “resolutions” either and I don’t feel like “intentions” best encapsulates it, so “goals” it is.) In 2020, I checked off more of my goals than I ever have.

Reflecting on 2020 and looking forward to 2021
Reflecting on 2020 and looking forward to 2021

2020 ACCOMPLISHMENTS:

  1. Graduated college. After 8 years of going to SCAD part-time for my BFA in Graphic Design, I finally graduated in the winter before all the COVID madness escalated in the spring (just in time hehe).
  2. Grew Drifter Organics. Right now, Drifter is more like a perpetually hungry, crying baby that needs all of my attention and subsists on money, but at the same time, it’s not that far off from being profitable either. This past year, we launched two new products: a hand sanitizer and body soaps (with a matching cute soap dish collab with West of Venus to boot!). We also redid our website. We grew our team to 4 and were part of Nordstrom’s Pop-In@Nordstrom New Beauty shop. Overall, I feel like Drifter is turning into an entity bigger than myself and my mom and I can definitely see it growing into a profitable business very soon if we’re wise with our money.
  3. Got an official health diagnosis!!!! Since I already wrote a blog post about it, I won’t go too into depth, but this was something I’ve been searching for for 5+ years, so when I think of the fact that I now have ANSWERS, that’s huge!
  4. Found a good insurance plan. Not the sexiest accomplishment, but as a self-employed contractor in the United States, it was something extremely important nonetheless.
  5. Educated myself with more movies, TV shows, and pop culture. This is something I did more in the latter part of the year, have been thoroughly enjoying, and definitely want to carry with me into the new year and beyond. I love watching movies. I think they can be just as educational and inspiring—if not more at times—than books.
  6. Sold a lot of my stuff. Over the years, I’ve accumulated way too much stuff which was cluttering both my physical and mental spaces. I’ve been regularly selling clothes, accessories, trinkets, furniture, and other household items on resale sites, and it feels so liberating to shed off all my excess belongings. It also sets me up for #7, which is probably my most important accomplishment of 2020.
  7. Found a new city to settle in. In two short weeks, I’m moving to Los Angeles. I’ve been working on manifesting this move for YEARS and the fact that it’s actually happening is enough to freak me out so much I wonder if it’s the right move to make. But I know it is. I’ll write a blog post diving deeper into my reasons for and feelings about leaving the Bay Area, but for years, I’ve been in this state of influx, and it feels good to plant roots in a new city.
Reflecting on 2020 and looking forward to 2021

As we move into 2021, I think about my goals for the new year. I tend to be a go-big-or-go-home type of person who has a million and one things going on all at once which keeps me in a state of perpetual anxiety even though my intuition knows everything is going to be okay. But this approach at life has me questioning its sustainability. Like what if I didn’t plow headfirst into new projects and actually relaxed once in a while? More than anything—especially after all these years of being influx—I crave peace. That’s all I want: the simple joys. Like watching your favorite movie with your favorite people or letting the sun hit your back as you read a book outside or laughing at a funny joke someone told or going to bed early. With most of the world being in lockdown and COVID not going anywhere anytime soon, I’m going to embrace the little, nothing delights that actually mean everything.

2021 GOALS:

  1. Continue to grow Drifter Organics. I just love my mom and my small business so much, every time I work on it, I think, “Wow, I’d actually sell a kidney to have Drifter succeed.” It means everything to me. We will become profitable by this time next year—I know it. (As a side note, for vanity’s sake, I’d love to have Drifter endorsed by a celebrity like Elle Fanning, Hilary Duff, or Zoë Kravitz. I’ll take Nicole Kidman, too. Or Mindy Kaling. Iliza Shlesinger and Emma Chamberlain are awesome too.)
  2. Do more art direction work. I spend so much time working on Drifter, but I’m also a freelance art director and content creator (I went to school for graphic design, after all!) I’ve gotten a few independent contract jobs I’m really excited about and would love to continue to build up my portfolio.
  3. Start on a solid chronic illness treatment plan. After I settle into Los Angeles, I have to get serious about healing my health. I’ve been operating as a half-broken machine for way too long and for someone who preaches about health and wellness, that’s not healthy. I know I can heal if I let myself.
  4. Watch more movies and TV shows. I did an excellent job keeping up with the latest TV shows and movies of this past year. Heck, these past two weeks of Christmas and New Years, I watched 9 movies. And my heart truly feels more cultured and fulfilled.
  5. Complete 10 puzzles. One of my mom and my favorite activities growing up was to do puzzles. They’re fun, entertaining, and encourage wholesome communication. I want to get back to simple things like that.
  6. Play more board games. In similar vein to #5, but board games (and I’m not talking about computer or mobile board games) are an amazing way to engage with others and get to know them on a deeper level without staring at a screen.
  7. Sell more of my belongings and be more intentional about what I buy. I have a tendency of saving things and nothing appeals to me more right now than decluttering and starting fresh sparse. That’s not to say I won’t be buying any new things year, but I’m definitely going to be more intentional and choose quality + spark joy factor > quantity.
Reflecting on 2020 and looking forward to 2021
Reflecting on 2020 and looking forward to 2021

2020 was one of the most transformative years of my life. (I realize I said that in my 2019 recap blog post, but I think this year was even more so transformative for personal growth.) I did so much internal growing and am entering into the new year with a fresh mindset and different priorities. I’m learning to live life through the lens of excitement rather than fear. I truly believe that 2021 is going to be the year where things finally settle down and I see the fruits of my labors come to fruition.

Hello, 2021? Calling in nothing but positive energy for you!

What are you looking forward to in 2021 and beyond?

P.S. Check out my 2019 recap blog post here.

The Stomach Diaries Part X: My Official Diagnosis (!!!)

October 21, 2020

The Stomach Diaries Part X: My Official Diagnosis (!!!)
Right before my appointment with Dr. Lehman

Woweeee is this post a long time in coming. The last time I wrote a Stomach Diaries post was over a year ago. The reason why I didn’t write any health update blog posts was I was still bouncing around from doctor to doctor who looked at me, scratched their heads, and sent me off to the next specialist—so there wasn’t really anything to update you on. Last October, my gastroenterologist at Stanford Health Care gave me a colonoscopy and endoscopy. I’d had an endoscopy before which didn’t offer any abnormal results, but never a colonoscopy. I suppose since he was going to give me a colonoscopy, he figured he might as well check out the insides of my esophagus and stomach too while he was at it and I was under anesthesia. How my body responded to the prep solution for the colonoscopy was telling in itself that there was something severely wrong with my digestion.

I started drinking my prep solution 12 or however many hours ahead of time from your appointment you’re supposed to start. After reading the instructions and hearing my parents’ advice to make sure I was close to a toilet with easy access to pulling down my pants, I was prepared for some major housecleaning. I’m chronically bloated and constipated, so in a sick way, I was looking forward to the effects of the prep. I took the first dose of solution and waited a few minutes for the magic to kick in. And waited. And waited and waited and waited and waited. Nothing. Then, I drank my second dose to adhere to the time schedule of drinking the solution. Nothing. After a few hours of prep, my stomach was distended, crampy, and hurting from downing so much liquid at such a rapid pace. Long story short, would you believe the colonoscopy prep solution, the concoction specifically designed to flush EVERYTHING out of your system, left me bloated and constipated?

The next morning, I waddled into my appointment with liquid sloshing in my stomach with every step. The nurse asked me procedural colonoscopy questions, like when was the last time I’d drank/eaten, if I drank the prep solution, and if I was properly cleaned out. Yes, yes, and nope—not even close. As it turned out, my GI only needed to collect biopsies from my colon and stomach, so the fact that he could hardly see ANYTHING with his camera didn’t matter much in this instance. HOWEVER, it gave him a clue that perhaps my issues didn’t have anything to do with a food allergy (like Celiac disease or Crohn’s disease) but rather my pacemaker cells were not working properly and that was why I always feel so bloated and constipated. Oh and in case you’re wondering, the biopsies came back normal.

The next test I got done at Stanford was a Gastric Emptying Study. This is the test they perform to diagnosis gastroparesis which is partial or full paralysis of the stomach. The test is an all day affair. In the morning, they feed you a breakfast of eggs and toast laced with a radioactive dye. Then, you get MRI scans every hour on the hour for the next 8 hours. This tracks how fast you’re able to digest the meal. The average person can completely digest the food after 4 hours. After 8 hours, I still had food in me. BINGO. My stomach was partially paralyzed. My issue was a gut motility issue which is why even drinking water sometimes bloats me. The GI’s solution? There were medications I could take that could help stimulate my pacemaker cells, but I was dubious. Gastroparesis was still a symptom of something greater. I was getting closer to figuring out the root cause of my issues, but still not there yet. The question that plagued me was what was causing my gastroparesis? I didn’t want to take medication to treat a symptom without first figuring out the root cause. There were still so many unresolved symptoms I experienced, like joint pain, chronic fatigue, eczema, dizziness, and headaches.

The GI sent me to a nutritionist about my gastroparesis who basically told me to not be afraid of food since I didn’t have food allergies. Theoretically, I could eat anything. So I tried eating sweet potatoes and winter squash since those are generally easy to digest. It did not go well with my gut. I saw a dermatologist about the eczema breakouts on my hands who told me I have very reactive skin—perhaps Raynaud’s—and wrote me a prescription for a topical steroid ointment. I saw a rhematologist about possible Raynaud’s who looked at my hands and agreed I had reactive skin, but it didn’t look like classic Raynaud’s. I saw a cardiologist about my chronic fatigue and dizziness who told me maybe it’s worth me traveling to Mayo Clinic because they specialize in the “weird and unusual”. Lastly, I saw a neurologist about my chronic headaches. She told me these were migraines. At this point, I’d been doing a lot of research on my own and kept coming back to articles on chronic Lyme disease, parasites, and mold. I asked the neurologist if she thought the root cause might be an infectious disease like Lyme and she said that it might. She was the first doctor I’d seen to not immediately shut down the idea. (I’d brought up the topic of chronic Lyme to some of the other specialists who immediately said it wasn’t likely if I hadn’t gotten a bullseye rash which I hadn’t.)

As an aside, Stanford Health Care is a world renown popular research center and sees patients from all over the world. As you can imagine, it’s extremely difficult to get an appointment. I’d often have to wait 3+ months after each doctor’s visit to be able to get either a follow-up appointment or a first visit with a new doctor. At this point, it was June, coming up on almost a year since my colonoscopy and endoscopy. I graduated from SCAD this past spring (woohoo!) and in July, my family and I were going on a road trip to LA as my graduation gift. I’d been following my friend Jordan’s journey to a chronic Lyme diagnosis for years and knew she had been diagnosed by a Lyme Literate Medical Doctor (LLMD) in LA, Dr. Erica Lehman. Jordan had similar gut, skin, fatigue, and cognitive issues to me. A nagging voice in my head kept saying, “Pursue a Lyme diagnosis, pursue a Lyme diagnosis, pursue a Lyme diagnosis”. After giving it a lot of thought, I booked an appointment with Dr. Lehman during the time we were going to be in LA.

The Stomach Diaries Part X: My Official Diagnosis (!!!)
My mom took no less than 1,000,000 pictures to document every moment of the visit.

I thought I’d be more nervous the day of my appointment with Dr. Lehman, but I wasn’t. The moment I opened up the door to her office, a wave of calmness washed over me. I knew I was in the right place. This was where I belonged. I was going to get my answers here. As I took my seat in the waiting room after checking in, I saw a middle-aged woman in black scrubs with her long, dark brown hair loosely swept up into a claw clip. She jogged to the front desk to tell the receptionist something, then quickly jogged back to the exam rooms. I thought she was a nurse judging by the way she carried herself with no pretense or conceit, but then I realized she was Dr. Lehman herself. This was the doctor who was going to diagnose me.

I sent Dr. Lehman a list of all of my symptoms, photos, and bloodwork ahead of time, so even though this was our first appointment, I felt like we already had rapport. My parents accompanied me during my appointment for support. Dr. Lehman listened to my heart, inspected my eyes, ears, throat, and skin and said all my symptoms look like they could be traced back to chronic Lyme, co-infections of Lyme, Candida, and mold. She suspected the cuts and rashes on my hands weren’t eczema, but rather a symptom of an infectious disease. She ordered the IGeneX test for me to test for Lyme and co-infections, the Vibrant Mycotoxin test to test for Candida and mold, the Genova Diagnostics test for a GI Map, comprehensive stool analyses to test for parasites, and a full panel of bloodwork to test my thyroid, iron, iodine, liver function, etc.

The Stomach Diaries Part X: My Official Diagnosis (!!!)
Me and Dr. Lehman right after our first appointment

All of these tests are very specialized and take about one month to come back. Let me tell you, that month of waiting was a huge test of my patience. I had a feeling I had some sort of parasite or infectious disease—be it Lyme or something else—but still, I wanted the official test results. Since I don’t live in LA, we scheduled our follow-up appointment to go over the results over the phone. The day before my appointment, the office emailed me the results. I remember staring at the documents, trying to decipher them. I had the answers in my HANDS, but I still couldn’t figure out what the numbers and codes meant.

My official diagnosis is mold, Candida, Hashimoto’s, Babesia, and Bartonella. Babesia and Bartonella are co-infections of Lyme. Dr. Lehman suspects I was bitten by a tick at some point early on in my life and my body was able to fight off the Lyme, but not the co-infections. I do know that I was exposed to mold as an infant, so I think that was the gateway for me to picking up these other illnesses along the way. Bartonella in particular causes Bell’s Palsy (aka paralysis) of the gut. THIS is the cause of my gastroparesis! Dr. Lehman had me on a heavy duty supplemental protocol to first tackle the mold and Candida, Nystatin for the Candida, and a low dose of Synthroid and Nature-Throid for my Hashimoto’s. After we got those three under control, we could tackle the Babesia and Bartonella which would probably be trickier. To target the Babesia and Bartonella, some options are ozone therapy, stem cells, or medication. I’m not sure what route I’m going to go. It largely depends on how my body responds to these first treatments. After taking the supplements and Synthroid, I felt more energetic, but I saw no improvement with my digestion.

The Stomach Diaries Part X: My Official Diagnosis (!!!)
Waiting for my follow-up appointment

Earlier this month, I went to LA for an in-person visit to Dr. Lehman. She said that we probably underestimated how severe my mold and Candida are. I mean, I was exposed to mold as an infant before my immunity was built up, so by now, it’s probably invaded so much of my body. I did an IV drip antibiotic treatment to kill my mold while at the same time not killing my gut with the antibiotics. Dr. Lehman also looked at my tonsils and she said they looked enlarged, so she sent me to an ENT, Dr. Karimi, who looked at my tonsils and he said they looked “cryptic” which means that a lot of times, infections like mold and Candida hide out in the grooves of the tonsils. I’m probably going to have to get my tonsils removed in a few months. He also looked at my nose and said I have a bit of a deviated septum which could indicate that mold and Candida are hiding out in my sinuses, so I’ll probably have to get another surgery to correct my septum. It was extremely eyeopening for me to learn how mold and Candida can take over your entire system (sinuses, mouth, throat, gut, joints, etc.).

The Stomach Diaries Part X: My Official Diagnosis (!!!)
About to get my first IV drip

Ideally, Dr. Lehman would like me to get the IV drip twice a week for two months. I have to first strengthen my gut health before I get my tonsils removed as that is traumatic to the body and I’m in such a state of inflammation. Things are a bit up in the air right now as my family and I will be relocating to LA, but the official date is TBD as COVID-19 has thrown the entire world for a loop. It could be as early as November, but most likely around December/January.

It feels so good to finally have some solid answers. I am eternally grateful to Dr. Lehman who actually listened to me and didn’t pass off my symptoms as being psychosomatic or tell me that I need to learn to live with them. I’m planning on writing a book about my experiences and how misunderstood invisible illnesses are. But until then, I love keeping this little blog as my journal as well as recording regular Stories updates on Instagram (if you don’t follow me on Instagram, what are you doing??). They’ll be little time capsules for me to refer to when I write my book.

I truly believe it is one of my raisons d’être to spread awareness about chronic illnesses and autoimmune diseases and I don’t for one second wish I didn’t have them. My illnesses are what got me so interested in health, wellness, the mind-gut connection, and it’s what prompted my mom and me to start Drifter Organics. I would truly be a less interesting, less passionate, less creative person if I didn’t have these chronic illnesses and autoimmune diseases. Feel free to reach out to me with any questions or to share your experiences with chronic health issues—I’m always happy to chat anything invisible illness-related. Thanks for coming along with me for this rollercoaster of a ride. It’s not over yet, but we’ve reached a pivotal time in my healing journey: A DIAGNOSIS!

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